Everything we see and try to understand is viewed through filters that we have each developed over time for the different scenarios and situations we find ourselves in. As we swap out our perception filters, based on our ever-changing situation and circumstance, the filters themselves become distorted through the almost constant handling. It is these marred filters which determine our view of the world... Cancer and Stroke contribute significantly to the distortion.
Sunday, November 30, 2008
More Political Duplicity
The Conservatives wiretapped a NDP conference call, and have released only parts of it to the media.
The NDP appear to have been negotiating with the Bloc to form a coalition for some time now... and the first time they had discussions on a coalition government was with Stephen Harper and the Bloc when Martin had his minority Liberal government.
Holy cow... the 'undemocratic' formation of a coalition government is a page right of out Harper's own playbook. No wonder he's so upset!
I think that the Conservatives should really rethink whether or not Harper should stay or go. Personally, I think that I'd get behind Jim Prentice...
Saturday, November 29, 2008
More thoughts on the Political...
Mr. Flaherty's 'economic update' was a piece of flummery delivered and defended with arrogance. There is an emerging climate of fear out there... yes, it is largely unwarranted, but we all know what the mind of the 'mob' can do with the smallest goading. Generally, the 'mob' had no expectations. Unfortunately, Mr. Flaherty delivered to those expectations.
John Baird's attitude on 'As It Happens' last evening was equally arrogant, and a wee bit revisionist. He is generally such a well spoken man, I was a bit surprised at points. I listened to the program and was alternately galled and incensed.
Most of the people I have spoken to/emailed have the perception that the tax incentives offered as 'lasting initiatives for stimuli rather than following the American approach of cash injections' is based on tax cuts that happened or were promised long before a crisis was announced. Most people I spoke with were hard pressed to identify anything new.
The 25% change in the redemption of RIFFs is not enough to make seniors comfortable with the fate of their investments.
Cutting the discretionary spending of MPs constricts a source of revenue for some Canadians and the companies they work for. Not very stimulating.
The spectre of another $300 million election should not be viewed with such revulsion. What an interesting way to inject $300 million back into the economy. And isn't that what people want: some sort of stimuli? Maybe an election this time will get more voter participation and a clearly mandated government will emerge.
There needs to something concrete for the manufacturing sector as soon as possible.
The auto industry needs to be spanked for inefficiencies, and then given an incentive to do better. The Conservative Party and the bureaucratic spin doctors and publicists need to better publicize the letter that was sent to the Detroit automakers... very few people seem to know that its out there.
Telling a unionized workforce that one of the intrinsic rights of collective bargaining has been suspended was kinda dumb. Organized Labour nationally will get behind the NDP again, or maybe even the Liberals to protect against a domino effect that might further erode workers' rights.
Coming off an election where the mobilized Arts Community was at least partially responsible for the Conservative Party not gaining a majority, it seems a little vindictive, and short sighted to have slapped them by wiping out international travel/shipping subsidies administered by External Affairs, shutting down the Portrait Gallery bidding process, to name just a couple of the programs that have been quietly dismantled since the election.
Mr. Harper did promise to work more closely with the Opposition Parties. That could not possibly have happened given the week's events. The media (and those who didn't vote Conservative) are having a field day with what's been going on this week.
The Opposition Parties are starting to prove that they are able to 'play nice' together. The media (and those who didn't vote Conservative) are having a field day with what's been going on since Thursday.
The media (and those who didn't vote Conservative) have been able to interpret Mr. Harper's comment "The opposition has every right to defeat the government, but Stephane Dion does not have the right to take power without an election." as a narcissistic response. The misguided retort that I have heard most is; "...but does Stephen Harper have the right to hold on to power without owning the popular vote?". Slightly over 165,000 less people voted for the Conservative Party overall, than they did in 2006. Yes, less people voted this time, which may account for part of the discrepancy, so that may be a bit of a 'red herring'. But the Conservative Party only achieved 38% of the popular vote. That means that 62% of the voting public question whether the Conservative Party should govern.
Mr. Harper was seen to be 'playing politics' when he broke the Conservative Party brokered law on election timing. Not very 'democratic'.
Poking the Opposition Parties with a sharp stick by removing the subsidy was inappropriate, especially after having passed other measures to restrict political party fundraising during the last parliament. Mixed messaging from Mr. Flaherty and 'government sources' about whether the subsidies to the political parties would be part of the ways and means vote doesn't help.
All parties should be aware of and use Ms. May's popularity; her party could be a valuable grass roots ally going forward. A fourth viable party can work to the advantage of the Conservative Party, or the Liberals, or the NDP. It kinda depends who taps into their energy and growing power base first.
My advice to Mr. Harper and to the rest of the Conservative caucus; for the short term, stop overtly playing politics and govern appropriate to the needs of the country. The Conservative Party stands to lose the privilege.
Reflect, reconcile, consult and then act. But do it quickly.
J.'s Surgery
Friday, November 28, 2008
Certainty...
Politics...
And just maybe the Conservatives will get off their ideological hobby horse and come up with some real stimulus ideas for the economy.
In the event that the NDP and Liberals do put together a coalition government, I would nominate Ed Broadbent to act as the interim PM... but he'd have to have a seat to do that, wouldn't he? Well, then, failing that, what about giving it to one of the two independents? No? Then who? And that will be the toughest challenge facing the creation of a coalition government...
Wednesday, November 26, 2008
Its been a year...
What they did:
The surgery was one of the ugliest, most invasive procedures that I could have imagined being performed on me. It involved removal of the tumor and a clearance margin of 4 centimeters (or was it 8 centimeters?) around the tumor site, and the reconstruction of that area.
There were at least two teams working on me, and the operation lasted almost eight hours. You know, I just realized that I’ve forgotten how much time they actually took. They had given us estimates that ranged from 8 to 14 hours… I need to look that up again.
Okay, so I can’t give you a sequence to the surgery because of the two teams, but here’s a summary of what they did;
· They popped out a tooth at the front centerline of my jaw. Then they split/broke the jaw at that point. They cut down through the lip and through the floor of the mouth so that the jaw swung open sideways; the technique is called a mandibular swing.
· They then pulled the tongue forward and removed the tumor and the tonsil. They took, as part of the clear margin, the right lingual tonsil and a portion of the base of the tongue.
· It’s not good to leave huge gaps in the structure of the mouth and throat, so they filled in the area with a piece of muscle taken out of my left forearm. Why the forearm muscle? Apparently it’s been proven to ‘learn’ the functions of the tongue segment that it’s replacing.
· They also took a chunk of the radial artery in my left forearm to rebuild the vascular structure at the back of the throat/tongue to ensure blood flow.
· A skim of the left thigh skin was taken to replace what was taken from the forearm.
· They transplanted at least one saliva gland to a position on the lower jaw to save it from the radiation treatments. Radiation will incapacitate saliva glands. A platinum wire was placed in the jaw to mark its spot; basically a ‘do not radiate’ sign for the radiology oncologist.
· They did a neck dissection and removed all the lymph nodes from both sides of my neck. When they did the dissection, they had to 'manipulate' the spinal accessory nerve.
· They put it all back together again. And yes, they put a plate into my jaw to hold it together. And no, it doesn’t trigger airport metal detectors.
Compared to last year;
On the morning of the surgery, I weighed in at 208 lbs. This morning I weigh 161.2 lbs. For reference, I weighed 165 lbs. on my wedding day twenty years ago. So, in a year, I have a net loss of 46.8 lbs. Not a weight loss program that I’d suggest. It took me twenty years to amass that much weight; its not going back on quickly.
In theory, I’m still the same height. The challenge is that I slouch dreadfully. The damage to the spinal accessory nerve has caused the right shoulder to pull forward. I still tend to let my head droop. Working at a desk all day is contributing to the droop and the slouch.
My hair has returned, sort of. It seems really thin at the forehead hairline. Well, maybe it was that thin prior to the surgery/chemo… I had a quick look at a bad photo of me at K.’s wedding, and it did look a little thin. But, what hair has come back is darker, and the hair on the back of my head is really wavy. Too bad it wasn’t that wavy when I had long hair twenty years ago. And the less grey is good!
My beard, on the other hand, is really causing me some consternation. The beard is thinner on the right side of my face than it is on the left side. Both sides are thinner than it used to be. My mustache is fine. I have grown a goatee to hide the chin scar, which doesn’t look too terrible, if you don’t get too close. The beard that I can grow is almost entirely white. I mostly stay clean shaven, with the exception of the mustache and goatee. I do miss my beard.
The skin on my face and neck tends to be dry, much drier that it ever was before. The area of my eyebrows has become seriously dry to the point that I spend extra time rubbing moisturizer into the brows to stop the flaking.
Inside the head, things are definitely different, and weirder, and I’m not talking about how my mind now works. My teeth are migrating, compensating for the single tooth that was taken out of the centre of my lower jaw. In fact the gap has closed considerably. The bone break no longer ‘hurts’, but I can still notice it when I bite down hard. Chewing is so much easier now, although when I open wide, it still is not as wide as pre-surgery. Apparently that is because of the radiation rebound effect on the musculature. So I try to remember to stretch regularly, usually while driving which is probably very disconcerting for the drivers in opposing traffic.
There is some sort of muscle/tissue problem inside the mouth, along the right side. The area of the mouth floor is tight and not as flexible as the left side. But, remember, the surgery took a chunk of the back, right side of the tongue, and they did actually split the jaw and slice through the tissues in the floor of my mouth somewhere.
And mentioning the tongue… it has about 80% of the flexibility it did a year ago. It also feels a bit shorter, in that I can’t quite reach the areas on my teeth and gums that I used to be able to. It’s pretty scary how much you use the tongue, and for what. It’s not just to speak. The tongue plays a huge part in how you chew and swallow. And it autonomically (no, not automatically) wipes debris form your teeth and gums. The continued lack of flexibility prevents me from reaching all the way back to swipe my back teeth to clean them. And it feels weird all down the right edge of the tongue to the tip, sorta like the electrical charge that one feels when touching a 9 volt battery to your tongue to test it, only much less intense. But all in all, the tongue is so much better than even two months ago. I have high hopes for its near total recovery. There’s just the issue of the dryness.
The dryness of the tongue, which does begin to affect my speech after a time, is the direct result of the dry mouth syndrome brought on by the radiation damage to the saliva glands. They will never repair themselves, so I’m resigned to working with the one that was transplanted. I am experimenting with the drug pilocarpine to stimulate the last gland to Herculean effort. It will never be enough, but hey, every little bit will help.
Without the saliva, eating is a chore. I take a sip of liquid with each bite that needs to be chewed. And then I can swallow. Yes, the swallowing is pretty darned good, at about 85% of the original capability. Take a look, if you can find it, at the blog entry with the fluoroscopes of the swallowing reflex. It really isn’t as bad as I complain about… if I am diligent about the liquids. I eat with water and milk. Fruit juices tend to dry things out dramatically. Wine, well, it depends, but wine tends to have the same effect as fruit juice. Scotch, for some reason, is just fine. Thank goodness. But you don’t drink that stuff a tumbler at a time, unfortunately, which might help to give me the confidence to sing in public. At the moment I don’t sing as much as I croak. I don’t see that changing. But I can speak, and so long as I keep the tongue, and therefore the mouth hydrated I can speak for a long time.
The only other internal effect is my hearing. Now the change to my hearing was not as a result of the surgery, which in theory is what today’s lengthy note is about, but was a casualty of the chemotherapy. Cisplatin, the chemo drug, wiped out my ability to hear a particular frequency range, and gave me tinnitus, most pronounced in my left ear. I have hopes that the range will return; it’s already started coming back. But I suspect that I am stuck with the tiny glockenspiel and the constant low level white noise.
Back to the exterior: Complete range of motion in my neck has returned, although radiation rebounding continues to tighten up the tissues. I am numb in a band that extends from a point the size of a finger tip just under the left ear, forward under the chin at about three fingers width and around the neck under the right ear where the numbest flares up into my scalp to about three fingers width above, and including the right ear. It also covers an area out onto my right shoulder to the top of my arm at about a hands width. This is a major improvement! And mobility of the shoulder/arm is good and getting better.
Scarring will always be an issue. Vanity will determine how much of an issue at various points in my life. The doctors have said that the radiation and chemo therapies have effectively aged me by ten years. And yet I’ve been told that I actually look like I’m ten years younger. Okay, so we like that kind of stroking and we work with moisturizer to keep the skin looking its best and try other strategies to cope with the scars. The centre-of-the-jaw scar is covered by my goatee. The scars on my neck from the dissection will eventually get lost in an old man’s neck, but for now they’re really not that noticeable. The asymmetrical bulge of the transplanted saliva gland is the most annoying thing. I must admit that I have started wearing ties a lot, so my shirts are buttoned at the collar, saving our clients from discomfort.
My right forearm has the ugliest scar. It’s a three inch by six inch rectangle of tissue missing from the area where one wears their watch. Its just plain ugly. And the long thin scar that runs up to my elbow joint pointing out where they borrowed the vein from is almost as bad. I never did like short sleeved shirts…
But I almost always forget the scar on my thigh where they skimmed the skin to rebuild the forearm with ‘cause its virtually non-existent at this point.
And I’m thin. Really thin. Did I mention that?
Tuesday, November 25, 2008
Results
Alright! Take a deep breath, and on we go.
I did ask for something to offset the nose drip... I also asked for something for the tongue fungus. He came through with a couple of things that should help. I tell ya, its a good thing to have a drug plan.
Its starting to look like I do have something 'extra' growing on the tip of my nose. He was very concerned, at first, when I brought it to his attention... then broke out laughing upon closer examination. He thinks I've got a wart... Well, as funny as it seems to have a wart on the end of my nose, he's not taking any chances. He has referred me to a dermatologist to have it excised and analyzed. If its not a wart, it'll probably be a basil cell carcinoma, one of the least problematic of the skin cancers.
Tomorrow is the one year anniversary of the original surgery... time for an inventory.
Monday, November 24, 2008
...and then there's today.
The experiment with salagen/pilocarpine is progressing nicely. I think that I'm starting to feel some of the side effects which means that it is building up in my system and we should know soon if it's doing me any good. Side effects? I get a light layer of perspiration on my back within an hour of taking a pill; my nose drips; my bladder sudden fills up. Just minor physical 'discomforts', but I can cope with this if it means more saliva. And I have observed that I am using less of the artificial saliva.
This afternoon I have an appointment with my GP (Dr. Naiker) to discuss the results of the CT scan we did a couple of weeks ago. I've got a whole list of stuff to ask him about which includes the nose drip, the nose tip (there's something new there that shouldn't be), thighs, knees and hip pain, and bring him up to date on the pilocarpine.
I did check the 'visitor' log earlier this morning and discovered that someone from Michaels visited twice (I got the ip address, not their business card). I haven't heard a word from them, but I'm pleased to know that they appear to be following up on my complaint. Now it is totally possible that what hit the blog was an automated search engine... I know that some smart IT guys out there do that for their employers; they run an deep dive Internet search against their corporate names to pull up any new references. Its not unlike a 'clipping service' where you can pay an organization to scan newspapers, magazines and then all the online sources for articles about you or your product, and basically build you a scrapbook of the results. I believe that it was an internal Michaels' search because most of the commercial clipping services use their own names, or no names, in an attempt to offer their clients some level of anonymity.
Sunday, November 23, 2008
Just say NO! to Michaels custom framing...
Towards the end of August we took a beautiful print of Klimt's 'The Kiss', which we had picked up at the Tate Gallery, Albert Dock, in Liverpool, to Michaels--The Arts and Crafts Store in north Edmonton to have it properly framed. We had a discount coupon in hand. Even after the discount, the pricing on the framing job was, in my mind, exorbitant. However, G. really, really wanted it done so I gave in, and we placed the order.
I wandered into an independent framing shop some weeks later, and just for the hell of it, asked for a quote. Even without the discount, and with a slightly better quality matte, the job would have been $100.00 cheaper... Okay. I shrugged it off by rationalizing that the guy was probably trying to impress me and get me to bring in loads of stuff to be done.
About a week later, we got a call from Michaels asking if it was okay to trim the edge of the print to make it fit. Well, yes. We remembered the original conversation where we had expressly said to trim the white border. In fact, we gave very clear instructions about all of that sort of thing, which was written on the work order...
Several weeks later, we called at Michaels to ask about the framing job. After the counter clerk pulled out the work order and rushed about for a few minutes, she came back to us empty handed. Oh, dear... the matte that had arrived was cut wrong, so they had to re-order. "Didn't anyone call you?" Uh, no. And we didn't have any idea that they needed to send out for the matte to be cut in the first place. There is a sizable assembly shop in the back, which can be seen from the counter. One would expect that the work was being done on site... especially given that we could see a worker fitting a canvas to a frame as we waited. However, it appears that matte cutting is not done on site. Odd. I shrugged.
Weeks went by. We called Michaels. Oh, yes, the matte was in and the job would be done really soon.
Wednesday we got a call asking if they could trim the print. Uh, yes. I just shake my head.
And then Friday we got the call that the finished job was ready. Our lives being as chaotic as they are, we didn't get to the store until after 3:00 pm yesterday. There was no one at the custom framing counter. Wait a minute. Saturday, and there's no one on the counter? There's got to be someone in the area. We could see a young woman working away in the shop area, assembling frames... so we got her attention. But she was not 'empowered' (my word, not hers) to find and give us our order. We needed to wait until counter staff came back. We waited for fifteen minutes while she checked the lunchroom, paged over the intercom, and finally put us on ignore and went back to work... There were two other customers who showed up, who also told of their three month delivery time horrors on simple jobs...
Eventually, the senior member of the counter staff did show up and without any fuss, walked directly to the wrapped, framed print and presented it to us, commenting on how lovely it was, and wanting to know how we got it from England without any creases... It does look lovely.
I went to hang it this morning and discovered that they attached the hanging wire (on the back of the frame) so that the print hangs SIDEWAYS! I couldn't believe it! I moved the wire myself. Maybe I should bill them for that.
And yes, I have sent an email to corporate head office complaining... not that that's going to do a lot of good. Head office is in Texas.
I normally don't have a problem with Michaels--The Arts and Crafts Store... G. and I use them a lot for different things, but I definitely have a problem with their custom framing department. This is the second time that I've used that service. They are slow, expensive (in spite of their 50 and 60 percent off coupons!) and their understanding of customer service is non-existent. Please, consider using an independent! At least an independent is interested in you as a customer, and might have a passing familiarity with famous art!
As a sidebar, I noticed yesterday that almost all of the cashiers at the Michaels in north Edmonton (137 Avenue) seemed to be lethargic and morose. I got the impression that Michaels is not a happy place to work.
Friday, November 21, 2008
Yesterday's Physio
Strength is coming back into the all the right areas. We have adjusted my exercise list to include strength building moves with the stretch/mobility activities.
Thank goodness... that means that the majority of the impact to the spinal accessory nerve has largely been mitigated. I still have some numbness across the top of my shoulder, but control over the major groups is back. Now I just have to remember to stand up straight, and not slip into the more comfortable slouch. Breathing more deeply will help to support the more open chest and upright posture. I guess I need to seriously think about yoga and/or tai chi...
And just think how good things would be if I actually did the exercises as regularly as I should!
The blonde, the brunette and the vengeful redhead

Tuesday, November 18, 2008
And no, I'm not actually going to the game... we've got tickets for a play at The Citadel.
I'm about two weeks into using Salagen/pilocarpine in an attempt to stimulate saliva production. I can't tell yet whether or not its actually working. The doctor did warn me that I might not reap the benefits for up to two months... and then I may not find any real benefit at all. I do know that I am much more aware of my saliva production. I think that I am noticing a very slight difference, but then again, it could simply be the awareness that enhances the perception... I may be stimulating production just by being focused on it. Unfortunately, the level of production is still not enough to eat without constant sipping of liquid. And worse still, the sipping of wine while eating just compounds the problem! Water and milk... boring!
I finally gave in and phoned the doctor for an appointment to discuss last week's CT Scan... there can't be anything too terribly wrong or he would have been on it immediately after getting the radiologist's report...
Sunday, November 16, 2008
I've been hiding in the basement office, supposedly studying for yet another exam. It seems like there's always another exam... Instead of spending all the time studying Service Strategy, I've been tinkering with the website, and researching different web hosting organizations. I need to come up with a decent domain name before moving the website, however... and I just haven't been able to settle on anything clever, yet appropriate.
And, I've been re-reading this blog to remind myself of what's gone on in the last year. Wow. We're coming up to the one year anniversary of the cancer surgery. Wow.
I've also been reviewing how people have been finding this blog. I use a web-based tracker, SiteManager, to keep track of where readers are from (can't see who, just the where and when) and how they got to this blog. Of course its mostly family and friends who were given the address, with a very few who linked in from the website. Not enough from the website, though, which is one reason to move it. At the moment its tucked too far behind the Shaw Internet DMZ, and doesn't get crawled by the Internet search engines, so its time to move it to somewhere that the search bots can get at it. But the other way people have been finding the blog is through google searches.
The most popular google searches that point eventually to this blog are, in no particular order:
- Dr. Akubutu's Mouthwash
- forearm flap (its the photos, apparently)
- quadroscopy
- portrait and Victoria, in combination... can't quite figure that one out
Friday, November 14, 2008
Dumb, eh?
I do, however, enjoy the thought that friends who I don't speak with enough, in some cases not for years, check in occasionally. Somewhere in the back of my mind, I believe that the expectations of me (and this blog) are different...
Oh, well...
So, on Monday of this week I had another CT Scan of my kidneys, looking to ensure that that little bit of scar tissue hasn't grown, moved, or done anything else awkward. Its interesting to note that the radiologist has determined that the contrast dyes aren't needed; it was a really fast appointment this time. I expect to get the 'summons' from the doctor's office any day now to discuss the scan results. The simple fact that we've gone five days without the call is a good thing... no pressing need to tell me bad news. The flip side of the coin may be that the radiologists are too darned busy to read the scan and write up the results...
Oh, and I'm up three pounds. G. has been practicing her gluten-free baking and has found several really good recipes for breads, muffins, cinnamon buns that not only worked, but taste good. It helps that my swallow is much better, and that I've figured out a chew-drink-swallow-chew rhythm that feels okay. I'm less self conscious about eating in front of people...
G. is so much happier, bordering on content, since she re-organized her work life. Much less stress, more job satisfaction.
We did get notification just the other day that my Dad's PSAs (a blood test that tells you all sorts of things about the status of prostate health) have reached zero... which means that his prostate cancer is completely under control and he can stop with the hormone treatments. Yay! It certainly should make Mom's life easier...
On a political note; what the hell are the federal Conservatives thinking? They lost their shot at a majority (partly) because of the artists in this country who were angry at the cavalier attitude to the contribution of the arts to this country, only to turn around and blow off the same community with their bizarre announcement about the National Portrait Gallery. Idiots. The Alberta bids required no financial contribution from the federal coffers; all private money. It would have been a fabulous publicity angle to leverage downloading support for the arts onto the private sector! Idiots. And, they've pulled other funding for other projects in their electoral heartland that have angered the provincial Conservatives... Idiots. Is it any wonder that Premier Stelmach chose to go on his previously scheduled trade mission to Europe (huge trading partner; important initiative; billions of dollars at stake) and sent the Education Minister to the First Ministers' meeting? He didn't even think the meeting was worth diverting the Finance Minister for a day or two... And guess what? The outputs of that meeting were insubstantial... the bunch of them could have phoned it in. Makes Harper look silly, again. Idiots. Even George Bush is getting more traction with his inspired disasters. Idiots.